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Delaware Youth Rare Disease Advocacy
Explore our services and get in touch
Our Services
01.Prevalence
Estimates suggest that up to 80,000 Delawareans suffer from rare disease.
02.Local Support Network Connect
Get connected with local Delaware-based support groups, patient communities, and advocacy organizations for rare diseases. Our team identifies and introduces you to resources that understand your specific challenges within the state.
03.Patient Journey Navigator
Let us help you map out potential pathways for navigating the healthcare and support systems in Delaware for rare disease patients. We provide guidance on identifying specialists, understanding treatment options, and accessing available state resources.
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